| Information for Families with Children in the PICU
Internet resources:
Family Village - A general resource guide for patients with disabilities.
Resources for Parents:
Aaron's Tracheotomy Page - A home guide with lot's of information about tracheostomies -- caring for them, living with them, need for them, etc.
American Lung Association Fact Sheet on ARDS (Acute Respiratory Distress syndrome) - Contains description of this illness.
Dr. C. Evert Koop's Encyclopedia - A general information guide on pediatric health.
PDR Family Guide Encyclopedia of Medical Care - A searchable guide of many health resources.
Medical Information:
Patient Education Materials in Congenital Heart Disease - Links to the Cardiology Teaching Files at Southern Illinois University with information about specific congenital heart defects.
Online Mendelian Inheritance in Man - Search site from the National Center for Biotechnology Information that provides search capability for information related to inherited diseases.
For more information:
Faye Taylor
91 East Concord Street
6th Floor
Boston, MA 02118
Faye.Taylor@bmc.org | 
