Our Registry Newsletter was created for two purposes: to update our participants on the Registry and to provide an open board for both healthcare professionals and patients. We hope the newsletter will be educational, supportive and interesting. As a Registry participant, we encourage you to contribute a story, a favorite recipe or comments!
Summer 2011 – This summer, read about Cyndi’s lifelong journey with ulcerative colitis and her experience with the IPAA procedure. Then meet the Registry staff, browse through the baseline questionnaire results, learn about the pelvic floor exercise and laugh with Peter as he retells his story of complications at the in-laws! Finally, celebrate with us in our success at the Crohn’s & Colitis Foundation’s Take Steps Boston, review our information on pouchitis taken from recent publications by our Investigators and follow our medical students in their summer research.
Winter 2011 – We are seeking material for our Winter 2011 newsletter. If you wish to contribute, please call us at 617.414.8013 or send an email. We look forward to hearing from you!